Monday, May 20, 2013

Biopsy and Stander update

According to our results, Christianna does not have a mito. disease. And the EEG came back with abnormal brain activity, but no seizure activity.  Not much skin brake-down at all either.  As we were told before, abnormal brain activity is... Wait for it... Wait for it... NORMAL for folks w/ epilepsy!  Bazinga! Not really a bazinga, seriously, but bazinga is fun to say.

The stander looked as lovely as a stander could, I guess.  However it was not a good fit for Cianna as she kept hanging herself by the chest strap.   Around nine months of working on getting it for, nothing! 
Maybe it's for the best and God is protecting her so she can freely move?  We shall see.
She looks miserable right. 

Ft. Wayne And Onward!

Well we are here!! A long awaited trip.  This is our second trip with an Anat Baniel Method practitioner. Mr. Jon Martinez is the practitioner here in Ft. Wayne w/ Movement Matters.
Joey took these shots...  So they're sort of silly.
Jon observed that Christianna moved her hips well and her head well, but the connect between the two wasn't really there.  In the second lesson her movement was more fluid.   He worked on her rolling some and was rolling her back and forth from side to side and one of those times her head continued to roll so that it was tucked underneath.  So she roller from back to right side with her body facing right/ down to belly, but her neck continued to roll and was facing almost opposite.  It sounds weird , but looked good. We shall record more tomorrow.