Saturday, March 17, 2012

My head is heavy!

I got to Skype with Cianna and Lin. (Sometimes, technology rocks!)

Cianna is sitting up some (and falling over some).  She holds her head up, and then at other times she sits with her chin almost touching her chest, like it's so heavy!  She's not making many sounds, but that could be due to the feeding tube.  She kept pulling off the oxygen monitor, so now it's attached and she has a sock on that foot.

They're still giving her B6 twice a day and she's still getting Keppra and Phenobarbital, although they're not giving her such a big dose...

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